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The perinatal hospice is not a place. It is a concept of holistic care of family when the parents learn that their unborn child will  live shorter life than themselves. Those parents are mostly young, healthy couples with no disease. After the preliminary diagnosis, their world collapses, and they look for help. Before all, they want to validate the diagnosis, and they need accurate medical information. Since cardiac anomalies are the most frequent ones, they get to our Ultrasound Clinic Agatowa which is the bigger reference center of prenatal cardiac diagnostics in Poland. The physician who performs fetal echocardiography explains to the parents the medical issues, and if needed, proposes additional tests. Each consultation is conducted in presence of one of our hospice psychologists.  
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The Minister of Health may by regulation set the standards of medical procedures in selected areas of medicine or regarding selected healthcare providers, in order to guarantee a proper quality of healthcare services (Article 22 par. 5 of the law from 15 April 2011 on healthcare activity; OJ, 19 January 2018, 160)

The present publication is dedicated to the Minister of Health. Our objective is to convince that “a proper quality of healthcare services” in perinatal and home hospices for children in Poland is necessary and must be provided. 

Why?

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    Lethal Defects in Foetuses and Neonates Palliative Care as an Alternative to Eugenic Abortion, Eugenic Infanticide, and Therapeutic Obstinacy